Navigating my way through metastatic breast cancer while sailing into the unknown
Hi there,I am also a Metastatic BC patient on Kadcyla. I like reading about how others are doing on the drug. Best wishes,Kel
Thank you for reading, Kel. I look for blogs to read by people on this drug too. I hope your time with this drug lasts a long time. It is a great one.
Good Morning! I wanted to introduce myself and share my new blog site. Strengthsinourstories.comI look forward to sharing our stories. Melissa
Hello, Melissa. After visiting your website and reading your story, I am saddened to find that you have Her2neu + breast cancer and are stage IV like me. I am adding your website to the list of "blogs I follow" so others can read your story as well. You now have a new follower--me.
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Hello:Your blog is very helpful. Thanks for the wonderful information.DW
Hi, DW. I am glad you found my blog and especially glad you thought the information helpful! Feel free to ask questions if any should cross your mind.
Hi, Lisa:Thanks so much. Today, I came across an interesting paper about "durable complete response" for Her2 positive Advanced Cancer like you. Here is the link: https://www.ncbi.nlm.nih.gov/pubmed/?term=28895005 As the paper suggests, wish you can achieve complete cure that has not been thought possible previously!DW
Thanks for that link, DW. For me though, when I was diagnosed stage IV, I was treated with Herceptin(1 year). It worked for a while with the help of Perjeta(1 year)and Taxotere (dropped after 9 months). I remember reading everything I could find about herceptin and saw some wonderful responses for people being treated for years with herceptin alone as their first-line of treatment like this paper shows. I wanted those results to be mine, but it was not to be. TDM-1 (Kadcyla) is second-line treatment. As you probably know, I am still on herceptin but with the added bonus of a harsh chemical attached to it. It has been wonderful for me--over 3 years. Scan in a week. Hoping for good news.
Hi, Lisa:Wish you have a good news. I understand it is tough situation for patients with mets. But study says that once a patient becomes NED (or NEAD), she will live a lot longer than average (http://www.cancernetwork.com/her2-positive-breast-cancer/metastatic-breast-cancer-patients-who-attain-no-evidence-disease-live-longer). Furthermore as the new drugs becomes available at unprecedented speed, we will be surprised how long advanced cancer patients could live (and enjoy quality life) in the future thanks to these drugs. I am also crossing fingers for my close person as well!
I am crossing fingers too in hopes that your loved one responds to treatment and lives a long and happy life. Bravo to you as you continue to research on their behalf.
Just want to say "Thanks" for including me on your blog list. To be honest, I didn't even know mine was listed here until I Googled my name trying to get to my Gmail account. Sometimes I feel overwhelmed with trying to keep up with my blog-- and so I'm not as aware of others' as I'd like to be. Anyway, I wish you the best in how you're reaching out to other cancer survivors. Warm Regards, Connie Rosser Riddle
You’re welcome, Connie. I am trying to help those that want to be heard or want to help others—a sort of “paying it forward”. I read your recent post about a literary agent telling you to increase your following on your social network accounts before they would consider your writing for publication. This is a hard endeavor as you can see from my own number of followers (pretty dismal). Maybe a few followers might come to your site from here. I hope so. Good luck with your book!